The joys of re-gifting!

My mom has a wee little cold. She wore a face mask while on the HOT unit today to keep her germies away from all the immunocompromised kids, and then came home and took a nap while I did. We both needed some sleep healing!















Chemo today went well. At our appointment, my amazing nurse practitioner said she had some good news.

Great, we will take it!

She said she knew the end date of my leukemia treatment!
What?!?

It seems a bit premature, but my mom is a girl who is tasky and likes firmly set and visible goals, so we listened together, as our NP revealed the date:
November 26, 2015!


Two full years to the date from the start of Interim Maintenance.

Well, won't THAT be a Thanksgiving to celebrate!!

But it is TWO FULL YEARS away, two full years of treatment. It kinda took Mom's breath away, but after a second, it filled us up with hope! The end IS in sight...

What a lucky kid I am to know that there is a recipe of disaster for my leukemia. That, if we follow the protocol, we can joyfully enter the 5 year schedule of cancer-free check ups that start two years from now and we will be able to put this all behind us...

They told us it would be a long road. And so far, I really haven't much minded it.

Maybe it's because I'm 2, and don't really know what's happening. Or maybe because, with all of your prayers, I haven't had the awful side effects that are a real possibility for kids getting chemo. Or maybe it's because God gave me a great demeanor and nothing much bothers me ever!

Thanks for taking this journey with me. Thanks for your prayers, your well wishes and your support!

Have a merry Christmas.
My silly little smile is my present to you! It's free and you can regift it! Enjoy!!

Thanksgiving

Hi Everyone. I'm still at home and doing well. I just wanted to get a shout out to all the people I'm thankful for this year: my family, my friends, my Anna, my doctors and nurses, my therapists, my church friends, and my prayer team, you know who you are, and even though I may not know who you are, I'm doing great because of your uplifting prayers and well wishes. I just know it! Thank you for keeping me in your hearts, thoughts and prayers. You're in mine too! Happy Thanksgiving.
I'm also thankful to all the kids and families who have gone before me with Leukemia, those with Down Syndrome, like me, and those without. Thanks to your families for allowing you to be on studies so that the scientists can learn the most they can about this cancer and the drugs and treatments that work and the ones that don't work. Your sacrifice is remembered often. Thank you.





The sound an elephant makes.




Coloring




Getting ready for a blood draw.




Reading a new book from GranMary and Grandpa.








Wearing a new outfit for Thanksgiving!




Yea!




I love typing on this thing like the big kids do.

 

God bless you this Holy Season. I'm not sure I'll make it to church, too many germs out there...but sing your loudest and your best for me. Thanks again for your prayers!