Daddy day

Clinic appointments on Mondays mean one thing:

DADDY DAY!

My mom had to work today, and Dad was able to take me in to
the clinic, which he doesn't get to do that often.  He was a little worried about making sure we
did everything right, but I told him not to worry.  I’m a pro at this.  When we checked in, the nurse behind the
counter said she needed to give me my wrist band, I held up my right arm
because that’s the side I like it on.  Then
we sat down to wait for the nurses to call us back.  When they wanted to check how much I weighed,
I went and stepped up on the scale all by myself.

When they wanted to see how tall I was, I went right to the
counter and asked the nurse to pick me up. 
I like them to check while I’m lying down on the counter.  When they wanted to put the blood pressure
cuff around my arm and give me an “arm hug”, I pointed to my left arm because
that’s where I like them to do that one. 
I also held up a finger on my right hand so they could put the pulse-ox glowing
red thing on it.

Then we went to my exam room to wait.  I wanted to play on their computer, but it
was too high.

So I got some reading done instead.

The port access went very smoothly, and I had to get some
fluids in to keep my kidneys healthy.  I
think Dad was feeling nervous, so I played peek-a-boo with him to keep him
relaxed.

Thankfully, it was a pretty easy day for me, and Dad handled
it really well, too. I got some chemotherapy in the clinic and don't have to come back until next week. After my chemo, we both
were happy to head home.

As for me, I was pooped, and slept the whole ride home. 

Taking care of Dad is a lot of work.

Hurry up and wait.

Have you ever done that? Hurry up and wait? You push push push to get out of the house on time, and you may have even been running a little late, and when you get there, there's a line of other folks waiting. Aarg! What do you do during that wait? Tap your foot? Make repeated eye contact with the person at the door to the entrance? Huff? My mom and I decided to pray. It was mostly my idea.

Today, I got to clinic and my pre-op check went well. I passed with flying colors. I've been really happy and healthy these past 3 weeks while we waited for my counts to recover. We got a green light for surgery. Then we waited for the OR. I had another spinal tap scheduled for today. Another brain washing. Rinsing down my cerebral spinal fluid with chemo, since my other chemos don't cross the blood brain barrier. Well, there was a delay in the OR and we had to wait.

First, we did some coloring.




Then, we read some books. Here I am making a scary face.






Then we got our escort to the surgery floor and we waited for the prep with the surgery nurse, then the anesthesiologist, then the surgeon. Mom and I had to do a lot of waiting. I hadn't eaten since yesterday in preparation for surgery so I was a bit hungry. And, waiting time overlapped with a little bit of my nap time. Admittedly, I was overtired and hungry and two years old. But, in our weakest moments that's when we need God the most and there's no call-waiting on that line! We just dialed and got right in.





Dear God, Please bless the kid and the family who had complications the the OR today. Help them heal and be well.



Dear God, Please bless the surgeons, doctors, nurses and all the staff at Children's Hospital of Wisconsin. They work so hard to do your work, to make us kids get better from things like cancer, heart disease, organ failure, diabetes and a myriad of other diseases. Thank you for educating them and giving them such big hearts.



Dear God, I've got one more request and one more thank you. Please make it so my surgery goes off today without a hitch. And, thank you for giving my mom and dad such wonderful friends and family. They need support even more than I do, at times, and it's so nice that you have given them so many good people in their lives to help them get in better touch with you and what's really important. Their words of encouragement have made this easier on Mom and Dad. I can tell. Thanks for having their back and for putting angels on earth.

Shortly after that, our surgery nurse came and took a picture of me and Mom. She wanted me to wear that ridiculous surgery hat. Get real.









And before I knew it, I was in the surgery suite. Mom got a chance to eat. Then, I was out of surgery, ready for a snuggle and on my way home.








Thank you, Prayer Warriors. Thanks for your prayers for me and for my family. God's line is always open. Dial in whenever you like. You can ask for stuff, thank him for His son, ask for forgiveness or strength or for patience... Whatever you need. Now, He doesn't always give you EXACTLY what you ask for, but He's listening and the lines are open right now... Give it a try. And thanks again for your prayers for me. "I feel good."

Location:Deer Run,Delavan,United States