Thursday, April 9, 2015

Great Day at Clinic





I start the fifth cycle of maintenance next month. This month we just checked in and discussed treatment doses, wore my dress for a cape while waiting for my nurses, flushed my port, ate some Cheerios and drank some milk (my eating hiatus is over,) played some IPad alphabet games, had a breathing treatment, visited Emma Paulson and the Flashes of Hope team and then walked very independently through the halls of the hospital waving to everyone.

All in all, ALL didn't have the upper hand today! Take that Cancer.



Blood pressure and oximetry





I'm getting taller!





Here's a Cheerio for you!









Wearing my dress as a cape while we wait for my awesome nurse to flush my port. No IV chemo this week!





I'm a superhero with big Muscles!





Playing an ABC game on my IPad.





Walking the long long skywalk all by myself. My newest and first sentence: "No, me do it!"

They prayed for me to start taking and that I'd grow up to be independent someday. I bet they didn't think it start at the ripe old age of three!!!

Have a great day! Thanks for your prayers!

Love, Katherine!

Thursday, April 2, 2015

No One Fights Alone!





When I was first diagnosed with ALL in August 2013, my big brother and sister were getting ready to head back to school. To teach their friends and teachers about what we were going through, what leukemia was and to teach my brother and sister that they were not alone it this journey,  we were able to buy 150 NO ONE FIGHTS ALONE bracelets with money from a friend who spotted us some extra cash during this hard time. We handed out those bracelets and we were proud to see them on wrists around town, on teachers, and friends. It really was neat. The truth of the matter is that when you're fighting the FIGHT OF YOUR LIFE, it's comforting to realize that you aren't fighting it alone. But that is also the heart break, because in addition to the people who are fighting for you, praying for you and giving you money for bracelets or gasoline those first few months, you end up meeting other people who are also FIGHTING FOR THEIR LIVES! No one fights alone, sure, but there are others who are fighting too. This cancer thing leaves no one out. I've come to believe I'm not all that special. Everyone's got it or may get it and we need to so something about it...


ENTER OUR AWESOME FIRST NURSE PRACTITIONER, MOLLY BRICKLER!

She was super sweet, helpful, and even knew friends of my mom. We connected right away and her spirit lifted ours during our first 35 day stay at Children's Hospital of Wisconsin. What we didn't know is that HER HUSBAND was diagnosed with cancer just a few months before I was! SEE? It's everywhere. Well, Molly is trying to raise $50,000 for the Leukemia and Lymphoma Society and we want to help her. Please please check out her blog. As of yet, I haven't done any fundraising, and if you were thinking to yourself... what can I do to help dear sweet ole me? WELL, this is it! Now, I did really petition hard to get folks out to my mom's blood drive last summer... and GUESS WHAT? She's doing another one for her next birthday. That girl has something about throwing herself birthday parties, but that's not until JUNE; Please watch for details.

http://mollybrickler.blogspot.com/


Until then, Please read Molly's blog and click the links, and help our awesome, NP and FRIEND get to the $50,000 mark. Once she gets there - she'll get to decide how the money is spent - and she is educated enough to know just what to do with it. RESEARCH, RESEARCH, RESEARCH! Remember my awesome extra chromosome? Well, research with blood from kids like me has helped to make the connection... the more connections we make, maybe we can really make a difference. BUT, it takes a lot more than pretty faces and sweet stories. It takes moo-la. Please help NP Molly, please read her story, her husband's story, the story of sweet Sammy, my next door neighbor in the hospital, who sadly lost his fight. Read them and decide to donate. Thank you so much for your time, your heart, your donation if you can and your prayers.


http://mollybrickler.blogspot.com/


http://www.mwoy.org/pages/wi/wi15/mbrickler


THANK YOU!

Love, Katherine