After today, I only have 3 more scheduled cancer appointments at Children's Hospital of Wisconsin. Three. Let's hope I don't get sick and throw in an extra visit or two.
I did somehow catch a cold on Tuesday this week. Either I caught it or I just discovered I have allergies. Whatever the cause, I'm pretty stuffed up and I'm hoping it doesn't give me a fever. Fevers mean ER visits and hospital stays. With only 3 months to go, it's hard to think every dose matters and every fever could mean the end of me, but Mom and Dad are still taking things pretty seriously: no missed doses, and limited exposure to sick people.
To help me keep my mind off of my runny nose and the sticky mess it makes and the trouble I've had sleeping because of it, I had brother and sister tag along to the hospital today... Then, we all went to the Zoo and after that we met a new friend who was born yesterday at another hospital. We buzzed in and outta there: baby wings are pretty safe, but hospitals are where sick people go, so we couldn't stay long. He sure was a cutie and Mommy and Sissy looked great!
I'm only 3, and certainly don't know everything. But this world is a pretty awesome place, filled with laughter and love, and even though things aren't always easy or just how we may have planned, it's a pretty amazing ride. Even this cancer thing: it's been hard at times- physically and emotionally hard, sad for sure- knowing that the road kills kids every day, but it's got its bright spots too- like meeting people who are using this experience for good by making organizations that raise awareness and money to help the next generation of fighters and joining with family and friends who have prayed for me and who have come to a spiritual place because of me. What was all this for? Maybe that. Maybe to introduce a handful of people to blood donation or book donation. We are lucky to live in this country and to have so many things. It's good to learn about giving. Maybe I got this awful disease to bring a community together and open awareness about Down Syndrome. My family certainly didn't know much about it before I was born, I kinda wish they had, and hadn't been so afraid for what my future may hold. I think it's going to be bright. Taking this cancer detour gave them the time to realize that, I think. I'm not sure. Whatever the reason, I'm hoping we get to the other side and can be better for it.
Here are pictures from our fun day hospital, Zoo, hospital. I hope you have a great 90 days and don't catch this cold I've got. Fall is coming. Start washing your hands more, praying more, and thanking God for all you've got. We'll do the same.
Check out this photo from last year: my hair has just come back and it was super blond. Do blonds have more fun? Sure looks like I was having a great day! I love my bro and sis. So lucky to have them. I'll miss them dearly as the school year starts! Good Luck to teachers and students everywhere.
Location:Down to three
