Mom took a lot of pictures today! A lot of pictures. Here's what we did:
We showed up early with our wheelchair of donated books. Thank you book donors!!! I was still asleep in my pajamas at 7:45am.
Eye appointment
Guess who is getting glasses?
Move to 7th floor, endocrine. Weight checked.
Height checked.
Bummer. I had to get my finger stuck to check my sugars. I'm ok! OUCH!
I got a bandaid.
And, I recovered quickly.
Met a new Fellow. My heart was fine. My thyroid is still broken.
Next floor- 5. Hot clinic- hematology, oncology, transplant. My home sweet home.
Elevator rides are fun!
Checking in to get a badge to allow access to the MACC fund clinic.
Checking out the books we brought in.
Getting tagged.
Another height and weight.
More blood pressure checks.
Using Katie's badge to get into the Day Hospital.
I'm Not a fan of the breathing treatment. But, good news is, today was the last one!! No more duckbill masks for mom and no more breathing treatments for me!
Riding around the day-side in a new MACC fund car. Can it be I'm getting too old for this?!
Time to paint, while getting a transfusion of Benadryl.
Nothing gets me down...
Except maybe Benadryl... That stuff works great. I got the last IVIG transfusion today too.
Next month, port removal. And then maybe a family vacation. Mom still won't let me leave the house, and today she nearly bathed me in hand sanitizer as we were in so many different places in the hospital today and exposed to so many germs. Maybe soon I'll be ready for general consumption. It's hard to believe that it's almost time for the switch... cancer can take a back seat (where it belongs) and Down Syndrome can reign supreme--- just in time for March, where on 3/21 we celebrate the third copy of my 21st chromosome. Not everyone has an extra chromosome like me. See if you can find your striped socks.... Plan to wear them with me on 3/21!!
Please pray that I don't come down with a cold after transversing what feels like this whole hospital today. Prayer really does matter and many prayers going up all at once on the same topic can make miracles happen. Thanks for praying for me. Next month I have to have surgery to take this port out. Mom is a bit worried. Having someone cut into my chest is understandably a bit concerning. Here's praying it all goes well. By then I'll probably have my new glasses. Oh my!
God bless you!
