Even though it never really changes speed.
And in no time at all it will be World Down Syndrome Day, again.
And in no time at all it will be World Down Syndrome Day, again.
 | |
| Here I am, acting silly, resting my chin on my toes. |
I just got back from my last oncology check up-
First I saw a medical student, then a resident, then someone who didn’t introduce themselves then my nurse practitioner.
All of whom asked, “How are things going?”
Great, is the answer.
Not much new here. And that’s- in a word: great. It’s been three months since my last visit and all my numbers are in the good ranges and it looks like we killed the cancer for good.
I’m still having trouble feeding myself- not because I lack the coordination- but because- ever since chemotherapy-someone was always willing to feed me to keep me healthy.
Boy, is that a hard habit to break.
I did feed myself a ham and cheese sandwich yesterday- so that’s something!
I still have to have second supper at 9 pm because my sugars went out of whack when the cancer came. I guess maybe someday I can live in Europe just fine because they have dinner late over there.
Anyone want to be a world traveler with me?
The world is my oyster!!
And truthfully- so far so true.
The world has begun to accept people like me more and more- with time and understanding.
In fact- you can help get the word out- that people like me are just like people like you.
People with Down syndrome are people, first and foremost. We have families and we look like the people in our families. We have bodies that work and minds that work. We have friends and we have people who love us and we have people who are mean to us and people who bully us. We have schools, homework and jobs. We love recess, dances and bowling.
We have a little something extra too and if you’re willing- you can celebrate it with us on
March 21, 2018. This Wednesday.
It’s World Down Syndrome day- 3/21
Celebrating the extra copy of the 21st chromosome.
Please wear silly socks/ they can be striped like chromosomes are striped/ or they can be silly - like me.
Please wear your socks and share this message. (Literally share this post or you can write your own!)
People with Down syndrome are a special part of every community and need love just like everyone else. Plus- we are good huggers and if you need love too- just ask one of us for a big squeeze. We're really pretty good at making people feel loved.
Thanks for being my friend and thanks for all you do to celebrate all people, their differences and their similarities.
Happy World Down Syndrome Day!
 | |||
| Here I am with a red wig on, dressing up as Ariel the Mermaid and acting silly. |
 |
| It's me, dressed a leprechaun. |
 | |||
| I decided to bring the books you donated to the hospital this week in wheelchair. Lots of books and a sweet ride. Thank you! |
 | ||
| My chromosomes - check out number 21. See? There are three copies of number 21. |
 | |||
| I called a lot of people about WORLD DOWN SYNDROME DAY when I was just a kid. |
 | |||||
| This is me, looking just like the people in my family. I have the same hair color, skin color and eye color as my siblings. People with Down syndrome are more alike than different. It's good to remember that people with Down syndrome are capable of love and learning and have many of the same hopes and dreams as people who have only 46 chromosomes. |
REMEMBER to
celebrate a little something extra
this WEDNESDAY
3/21
and wear some silly socks and when someone not wearing silly socks asks you about your socks... tell them all about World Down Syndrome Day.
THANK YOU!
