Top of the World

Check this out.









Two of Daddy's friends from college dedicated their hike to me. Dad was invited to go, but stayed home to be with me, in case I needed him. Last year about this time, I had a rocky few weeks, turned blue twice and I needed three blood transfusions. This cancer treatment is tricky, things can sometimes turn on a dime. I wish you could have gone to hang with your friends, Dad. Thanks for being the self sacrificing guy you are. You're one in a million, like these guys who decided to dedicate their hike to me. What heroes, all three of you.





AMGD,

Katherine Mary Grace





From Daddy's Friend, Paul Schmidt:



Today, Billy Zielinski and I hiked up Grays Peak- the tallest point on the continental divide and over 14k feet. Earlier, we had invited our college buddy Cevin Moses, but he couldn't because his adorable 3 yr old daughter has cancer. Life isn't fair. And while our hike hurt, it's nothing compared to that. Driving out here Billy and I decided to dedicate it Katherine. So that adorable little girl can be on top of the world, at least for a moment.

Location:Deer Run,Delavan town,United States

Photos of Katherine Mary Grace on the Jesus' Stone of Embalming, looking for healing. Photo taken by Father Angel Anaya on recent pilgrimage to Holy Land 2015.

Counting days

Now this is weird.
Mom doesn't want cancer treatment to be over. The end is near, like still way over 100 days away, but Mom already has started freaking out about being out of the ever comforting arms of our oncology team. Maybe it's the loss of notoriety, or the fact that she can't use cancer as an excuse for not taking me anywhere. This journey has been tough for me, tons of pokes (I get another blood draw today), spinal taps, drugs and poisons daily, food tasting awful, sleepy feeling, nausea, constipation, hair loss, spots, mouth sores, etc, but I've handled it all. Mom, on the other hand, well her journey has been different and I guess she's afraid of what happens when it's all over.

Well, Mom, here's the thing. It's never all over. In addition to waiting and checking monthly, then every other month, then every third month, then, well you get it, to see if my cancer comes back... There are kids every day who are getting diagnosed with cancer. If you feel like you just don't know what to do when I ring that bell... Let me tell you, it'll be ok.

I will ring the bell, sometime this fall. We will have a big party. Big! And then, with God willing, my life will move forward, we will be able to focus on my other big hurdles, like being differently-abled than other kids, we will work hard on my speech, my eating, my rebounding immune system and in our free time we can start attending these amazing fund raising efforts by those who can't forget the Childhood Cancer fight.

It'll be alright. For now, let's just focus on the now. On remembering to give me my daily chemo, hand washing, floor washing, not hanging out with sick people, and eating right. Let's have a good summer and we can start our countdown again at day 100, yes that's just 62 days away!

Springtime 2015 VIDEO

What an amazing spring.
Mom has been really busy.
Thankfully people came out in good numbers for her birthday blood drive and she was able to really celebrate! Seventy people locally and 14 people country wide donated in early JUNE for her, for me and that's just amazing. 
THANK YOU DONORS!

This spring we've had volleyball, baseball, laser tag, bike rides, and a lot of art work that came home as the big kids wrap up another school year. 

Check it all out in this family video of photographs.

I'm featured last...
I'm that something special they're singing about in the song, I think. 

Thanks for following my story and for your continued prayers!
GOD BLESS YOU!

I only have 168 days of cancer treatment left! Only 168 days. 


Click here to view this video