Counting days

Now this is weird.
Mom doesn't want cancer treatment to be over. The end is near, like still way over 100 days away, but Mom already has started freaking out about being out of the ever comforting arms of our oncology team. Maybe it's the loss of notoriety, or the fact that she can't use cancer as an excuse for not taking me anywhere. This journey has been tough for me, tons of pokes (I get another blood draw today), spinal taps, drugs and poisons daily, food tasting awful, sleepy feeling, nausea, constipation, hair loss, spots, mouth sores, etc, but I've handled it all. Mom, on the other hand, well her journey has been different and I guess she's afraid of what happens when it's all over.

Well, Mom, here's the thing. It's never all over. In addition to waiting and checking monthly, then every other month, then every third month, then, well you get it, to see if my cancer comes back... There are kids every day who are getting diagnosed with cancer. If you feel like you just don't know what to do when I ring that bell... Let me tell you, it'll be ok.

I will ring the bell, sometime this fall. We will have a big party. Big! And then, with God willing, my life will move forward, we will be able to focus on my other big hurdles, like being differently-abled than other kids, we will work hard on my speech, my eating, my rebounding immune system and in our free time we can start attending these amazing fund raising efforts by those who can't forget the Childhood Cancer fight.

It'll be alright. For now, let's just focus on the now. On remembering to give me my daily chemo, hand washing, floor washing, not hanging out with sick people, and eating right. Let's have a good summer and we can start our countdown again at day 100, yes that's just 62 days away!