Thursday, July 30, 2015

Great day at a Great Hospital







Once again, I had a great day at Children's Hospital of Wisconsin. Everything went well for me. On schedule, as expected and without complication.

Yes, my chemo isn't working as well as it once was, which means my oncologist had to increase my daily home medication dose, but I kind of expected that... I've been feeling great and have been learning lots this summer. So, for my last 4 months of treatment they're going to up my meds.





Checking my blood pressure.





Goofy posing before surgery. My extra chromosome makes me extra flexible.





Talking post-op with my new friend, Ralph the giraffe.





Feeding Ralph.





Pretending my bread crust was a mustache.


Today I had my second to last spinal tap. Pretty awesome. I can't believe I'm saying this, but I think I'm going to miss the sweet OR team and recovery nursing staff. They are the best and so gentle with me as I come out of my anesthesia sleep. They make bravery poster awards for me and are so kind.




Getting Ralph ready for the OR.





Ralph is ready for surgery!





Post op, I usually feel a bit sleepy. Here I am on my chariot ride through the hospital.



Today I also got to visit the Day Hospital side of the MACC Fund Center. They really thought about us kids when redesigning the space. Today Mom and I painted and colored with markers. Fun!













When I got home, I went on a bike ride with Mom and Dad! Mom missed her early morning mile because I had to be in the hospital so early. Are you running, walking or biking with her? Only 119 days left!!





Just me and Mom and Dad. My sibling are visiting Gran and Grandpa in Texas.




Here's a pretty Wisconsin flower bed at Mom's friends' house. We popped in for a visit after we left the hospital.

Everywhere I look things are blooming and I've got lots of reasons to smile. Mostly I smile because I have so many friends praying for me. I've only got 4 months left of treatment. What a ride. It doesn't really really end in 4 months as all cancer patients know, but the chemo does, and that's something!

Hope you have a great day, see lots of flowers in your neck of the woods and that everything goes your way too!

Thank you for your prayers and miles!!

And! Check this out... There were no books for kids my age today at the MACC Fund, but thanks to you, Mom restocked the book box while I was in surgery! Thank you book donors!!













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